Home Again

Saturday was an exciting day for us all, as Maria has come home from the hospital.  The doctors are all pleased with her progress, but she is really exhausted, and, in fitting with her personality, frankly cranky!!!  She needs to rest and recuperate, as she has gone through a lot, both physically and mentally.  She swings from ignoring the brace on her leg, to crying that it hurts and then resisting taking her medication.  In the evening she even tried to convince us that her ear was hurting!  Poor baby doesn't know how to express her confusion with this all.  We are trying our best to soothe and reassure her, and this morning, Sunday, she seems much more reasonable.  Her sisters have decorated her wheelchair with loads of stickers and she is being treated like a queen. 

We are trying to adjust as well, as she needs to be attended to even to go to the bathroom.  She needs to be picked up with care, and just settling into her chair, or bed, or the sofa can be complicated.  Hopefully she (and we) will get the hang of it soon.

I can only praise the patience and determination of Diana and Icho who are tirelessly at her side, giving her the love and attention she needs, while helping her come to grips with this situation.   It is not an easy job, and I am very proud of them.

We have a big day ahead- a visit from the Spanish family who's daughter is also a patient of Dr. Paley.   I will write again tonight or tomorrow!!